Posts

5 Years Later: Acknowledging My Grief

I let my Lupus anniversary slip by this year.  It's officially been five years since my diagnosis. It's also been five years since the Pelvic Floor Dysfunction diagnosis. It's been four years since the Fibromyalgia diganosis, and three years since the Anti-MAG Peripheral Neuropathy and MGUS diagnoses. As far as I'm aware, the Peripheral Neuropathy is the only illness that is technically progressive, meaning that it's supposed to get worse as time goes on.  The others can go into remission, get better, get worse, stay the same, it's all fairly unknown and, outside of treatment and care, a matter of luck. Well, I don't think I've had the best luck in the last few years.  Two years ago, I had that major back spasm that left me a bit debilitated and using a cane to get myself up from the bed and from my seats.  Physical therapy helped with the back, but I still have to use the cane for my worsening fatigue when climbing stairs and climbing hills and som

I Received My First "Me Too" Apology. It Was Disappointing.

Down the Rabbit Hole and Back: Part 2

Restroom Etiquette: A Plea to My Able-Bodied Sisters

Down the Rabbit Hole and Back, Part 1: An Update On My Diagnostic Testing

Undetermined Significance: Some answers, more questions.

It's World Lupus Awareness Day: A Day in My Lupie Life

Mending the Heart of a Lupus Warrior

How Lupus Has Dramatically Changed My Life, Part 2: Lifestyle

How Lupus Has Dramatically Changed My Life, Part I: Medical Treatment

My Interview for Lupus LA is Finally Published!

My Obamacare Interview on CNBC

The Devastation that Led to Gratitude